About Us

The Treacher Collins Family Support Group was set up in 1987 by a group of parents to meet the needs of families and individuals.

Aims Of The Group

To offer support and friendship to Treacher Collins families and individuals

To seek to gain greater knowledge and understanding of Treacher Collins Syndrome

To offer advice to families and individuals on various aspects of the syndrome

To help develop a clear policy on areas such as facial surgery, hearing aids and genetic counselling for Treacher Collins families and individuals

At Present

We are gathering information on the prevalence and variation of Treacher Collins Syndrome

We are publicising the existence of the Support Group

We are actively producing information aimed at both parents/individuals and professionals

What You Can Do To Help

Tell us about you and your family

Inform other Treacher Collins families/individuals about us